You can read about the project in Danish here:
Increasing evidence and perception show that there are a huge, persistent and not fully covered need for palliative care throughout the disease trajectory with advanced cancer. The 'early palliative care' is carried out at a variety of hospital departments (e.g. oncological, medical etc.) with some input from the general practitioners.
No nationwide knowledge about extent, contents, quality, results or adequacy of the palliative care in Denmark is available, and to our knowledge it is not based on systematic implementation of nationwide clinical guidelines. Currently, specialised palliative care teams/units are not significantly involved in 'early palliative care': One year before death only 4% of the cancer patients were admitted to specialised palliative care (hospice or palliative care team/unit) (Data from the Danish Palliative Care Database).
The purposes of the committee are to establish a formalised collaboration between the Danish Multidisciplinary Cancer Group (DMCG) of Palliative Care and the cancer site specific DMCGs, which should include research and development of the quality of palliative care in the disease trajectory with advanced cancer.
The goal is suggested to include:
- Establishment of a nationwide database for early palliative care, which will be included in the cancer site specific databases as well as in the Danish Palliative Care Database:
Nation-wide coordination of research in early palliative care, including establishment and completion of research protocols about models of early palliative care Development and implementation of clinical guidelines for early palliative care in the Danish health care system (starting with the hospitals), including expansion of the DMCGs' clinical guidelines/programs
- Data collection is included in and will be reported from the cancer site specific databases (generic model, with possible cancer site specific modules)
- While data from the cancer site specific databases will be united and analysed in the Danish Palliative Care Database
For more information about the project contact: Mathilde Adsersen, firstname.lastname@example.org