Publikationsliste

2017

 

Peer-reviewed articles

 

Eskildsen NB, Joergensen CR, Thomsen TG, Ross L, Dietz SM, Groenvold M, Johnsen AT. Patient empowerment – a systematic review of questionnaires measuring empowerment in cancer patients. Acta Oncologica 2017; 56: 156-165. DOI: 10.1080/0284186X.2016.126740

 

Johnsen AT, Eskildsen NB, Thomsen TG, Groenvold M, Ross L, Joergensen C. Conceptualizing patient empowerment in cancer follow-up by combining theory and qualitative data. Acta Oncologica 2017; 56: 232-238. DOI: 10.1080/0284186X.2016.1267403

 

Skorstengaard MH, Grønvold M, Jensen AB, Johnsen AT, Brogaard T, Christensen CA,  Andreassen P, Marsaa K, Neergaard MA. Advance care planning kan bruges til at planlægge pleje og behandling i forvejen. Ugeskrift for Læger 2017; 179: 2-5. V10160760.

 

Adsersen M, Thygesen LC, Jensen AB, Neergaard MA, Sjøgren P, Groenvold M. Is admittance to specialised palliative care among cancer patients related to sex, age and cancer diagnosis? A nation-wide study from the Danish Palliative Care Database (DPD). BMC Palliative Care  2017;16(1):21. doi: 10.1186/s12904-017-0194-z.

 

Luna IE, Kehlet H, Petersen, MA, Aasvang EK. Clinical, nociceptive and psychological profiling to predict acute pain after total knee arthroplastyActa anaesthesiologica 2017; 61: 676-687.

 

Groenvold M, Petersen MAa, Damkier A, Neergaard MA, Nielsen JB, Pedersen L, Sjøgren P, Strömgren AS, Vejlgaard TB, Gluud C, Lindschou J, Fayers P, Higginson IJ, Johnsen AT. Randomised clinical trial of early specialised palliative care plus standard care versus standard care alone in patients with advanced cancer: the Danish Palliative Care Trial (DanPaCT). Palliative Medicine 2017; May 1:269216317705100. doi: 10.1177/0269216317705100. [Epub ahead of print].

 

Other publications

 

Adsersen M, Hansen MB, Grønvold M. Dansk Palliativ Database: Årsrapport 2016. København: DMCG-PAL 2017.

 

Petersen MAa, Groenvold M. Clinical validation of the EORTC CAT – results of feasibility study and initiation of field study. EORTC Quality of Life Group Newsletter 2017: (16): 20.

 

Groenvold M. Expanding the EORTC Quality of Life measurement strategy. EORTC Quality of Life Group Newsletter 2017: (16): 8-9.

 

 

2016

 

Peer-reviewed articles

 

Giesinger JM, Kieffer JM, Fayers PM, Groenvold M, Petersen MA, Scott NW, Sprangers MA, Velikova G, Aaronson NK; EORTC Quality of Life Group. Replication and validation of higher order models demonstrated that a summary score for the EORTC QLQ-C30 is robust. Journal of Clinical Epidemiology 2016; 69: 79–88.

 

Petersen MA, Aaronson NK, Chie WC, Conroy T, Costantini A, Hammerlid E, Hjermstad MJ, Kaasa S, Loge JH, Velikova G, Young T, Groenvold M. Development of an item bank for computerized adaptive test (CAT) measurement of pain. Quality of Life Research 2016; 25: 1-11.

 

Petersen MA, Gamper EM, Costantini A, Giesinger JM, Bernhard Holzner, Colin Johnson, Sztankay M, Young T, Groenvold M; EORTC Quality of Life Group. An emotional functioning item bank of 24 items for computer adaptive testing was established. Journal of Clinical Epidemiology 2016; 90-100.

 

Rietjens J, Korfage IJ, Dunleavy L, Preston NJ, Jabbarian LJ, Christensen CA, de Brito M, Bulli F, Caswell G, Červ B, van Delden J, Deliens L, Gorini G, Groenvold M, Houttekier D, Ingravallo F, Kars MC, Lunder U, Miccinesi G, Mimić A, Paci E, Payne S, Polinder S, Pollock K, Seymour J, Simonič A, Johnsen AT, Verkissen MN, de Vries E, Wilcock A, Zwakman M, van der Heide A. Advance care planning – a multi-centre cluster randomised clinical trial: the research protocol of the ACTION study. BMC Cancer 2016; 16: 264. doi: 10.1186/s12885-016-2298-x.

 

Gamper EM, Petersen MA, Aaronson N, Costantini A, Giesinger JM, Holzner B, Kemmler G, Oberguggenberger A, Singer S, Young T, Groenvold M; EORTC Quality of Life Group. Development of an item bank for the EORTC Role Functioning Computer Adaptive Test (EORTC RF-CAT). Health Qual Life Outcomes 2016; May 6;14(1):72.

 

Winther KH, Cramon P, Watt T, Bjorner JB, Ekholm O, Feldt-Rasmussen U, Groenvold M, Rasmussen ÅK, Hegedüs L, Bonnema SJ. Disease-Specific as Well as Generic Quality of Life Is Widely Impacted in Autoimmune Hypothyroidism and Improves during the First Six Months of Levothyroxine Therapy. PLoS One 2016 Jun 3;11(6):e0156925.

 

Cramon P, Winther KH, Watt T, Bonnema SJ, Bjorner JB, Ekholm O, Groenvold M, Hegedus L, Feldt-Rasmussen U, Rasmussen ÅK. Quality of life impairments persist six months after treatment of Graves' hyperthyroidism and toxic nodular goiter: A prospective cohort study. Thyroid 2016; 26:1010-8.

 

Lund Rasmussen C, Johnsen AT, Petersen MA, Groenvold M. Change in health-related quality of life over 1 month in cancer patients with high initial levels of symptoms and problems. Quality of Life Research 2016; 25: 2669–2674. doi: 10.1007/s11136-016-1287-5.

 

Johnsen AT, Petersen MA, Snyder CF, Pedersen L, Groenvold M. How does pain experience relate to the need for pain relief? A secondary exploratory analysis in a large sample of cancer patients. Support Care Cancer 2016; 24: 4187–4195. doi: 10.1007/s00520-016-3246-7.

 

Wintner LM, Sztankay M, Aaronson N, Bottomley A, Giesinger JM, Groenvold M, Petersen MA, van de Poll-Franse L, Velikova G, Verdonck-de Leeuw I, Holzner B; EORTC Quality of Life Group. The use of EORTC measures in daily clinical practice - A synopsis of a newly developed manual. European Journal of Cancer 2016; 68: 73-81. doi: 10.1016/j.ejca.2016.08.024.

 

Groenvold M, Adsersen M, Hansen MB. Danish Palliative Care Database. Clinical Epidemiology 2016; 8: 637-43. DOI: 10.2147/CLEP.S99468

 

Bottomley A, Pe M, Sloan J, Basch E, Bonnetain F, Calvert M, Campbell A, Cleeland C, Cocks K, Collette L, Dueck AC, Devlin N, Flechtner HH, Gotay C, Greimel E, Griebsch I, Groenvold M, Hamel JF, King M, Kluetz PG, Koller M, Malone DC, Martinelli F, Mitchell SA, Moinpour CM, Musoro J, O'Connor D, Oliver K, Piault-Louis E, Piccart M, Pimentel FL, Quinten C, Reijneveld JC, Schürmann C, Smith AW, Soltys KM, Taphoorn MJ, Velikova G, Coens C; Setting International Standards in Analyzing Patient-Reported Outcomes and Quality of Life Endpoints Data (SISAQOL) consortium. Analysing data from patient-reported outcome and quality of life endpoints for cancer clinical trials: a start in setting international standards. Lancet Oncology 2016; 17: e510-e514. DOI: 10.1016/S1470-2045(16)30510-1

 

Karlsen RV, Frederiksen K, Larsen M B, von Heymann-Horan, AB, Appel CW, Christensen J, Tjønneland A, Ross LJohansen C,  Bidstrup PE. The impact of a breast cancer diagnosis on health-related quality of life. A prospective comparison among middle-aged to elderly women with and without breast cancerActa Oncologica 2016; 55: 720-7.

 

Jørgensen CC, Petersen MA, Kehlet H, Lundbeck Foundation Centre for Fast-track Hip and Knee Replacement Collaborative Group. Preoperative prediction of potentially preventable morbidity after fast-track hip and knee arthroplasty: a detailed descriptive cohort study. BMJ Open 2016; 6, e009813

 

 

Other publications

 

Hansen MB, Adsersen, M, Grønvold M. Dansk Palliativ Database: Årsrapport 2015. København: DMCG-PAL 2016.

 

Wintner LM, Sztankay M, Giesinger JM, Aaronson N, Bottomley A, Velikova G, Verdonck-de Leeuw I, van de Poll-Franse L, Groenvold M, Petersen MA, Holzner B; EORTC Quality of Life Group. Manual for the use of EORTC measures in daily clinical practice. Brussels, EORTC: 2016.

 

Petersen MAa, Groenvold M. The EORTC CAT project is completed! EORTC Quality of Life Group Newsletter 2016: (16): 14.

 

Johnsen AT, Eskildsen NB, Dietz SM, Therkildsen S, Ross L, Thomsen TG, Strömgren AS, Grønvold, Jørgensen C. Opskriften på brugerinvolvering i forskning. Ugeskrift for Læger 2016; 178: 292.

 

Christensen CA, Johnsen AT, Groenvold M. From 'Death Talks' to Advance Care Planning? Blog-indlæg på EAPC Blog: The Blog of the European Association of Palliative Care, postet 24.2.16.

 

Grønvold M. Tre læger skriver om deres egen og patienternes dødelighed. Boganmeldelse. Ugeskrift for Læger 2016; 178: 1670-1.

 

Groenvold M, Aaronson NK, Darlington A-SE, Fitzsimmons D, Greimel E, Holzner B, Reijneveld JC, Tomaszewski KA, Verdonck-de Leeuw I, van de Poll-Franse L, on behalf of the EORTC Quality of Life Group. Focusing on Core Patient-Reported Outcomes in Cancer Clinical Trials—Letter. Clinical Cancer Research 2016; 22: 5617.

 

 

2015

 

Peer-reviewed articles

 

Watt T, Barbesino G, Bjorner JB, Bonnema SJ, Bukvic B, Drummond R, Groenvold M, Hegedüs L, Kantzer V, Lasch KE, Marcocci C, Mishra A, Netea-Maier R, Ekker M, Paunovic I, Quinn TJ, Rasmussen AK, Russell A, Sabaretnam M, Smit J, Törring O, Zivaljevic V, Feldt-Rasmussen U. Cross-cultural validity of the thyroid-specific quality-of-life patient-reported outcome measure, ThyPRO. Quality of Life Research 2015; 24: 769-80.

 

Lund L, Ross L, Petersen MAa, Groenvold M. The interaction between informal cancer caregivers and health care professionals: a survey of caregivers' experiences of problems and unmet needs. Supportive Care in Cancer 2015; 23: 1719-33. doi: 10.1007/s00520-014-2529-0

 

Thamsborg LH, Petersen MA, Aaronson NK, Chie WC, Costantini A, Holzner B, Leeuw IM, Young T, Groenvold M; on behalf of the EORTC Quality of Life Group. Development of a lack of appetite item bank for computer-adaptive testing. Supportive Care in Cancer 2015; 23: 1541–1548.

 

Cramon P, Bonnema SJ, Bjorner JB, Ekholm O, Feldt-Rasmussen U, Frendl DM, Groenvold M, Hegedüs L, Rasmussen ÅK, Watt T. Quality of life in patients with benign non-toxic goiter: impact of disease, treatment response, and comparison with the general population. Thyroid 2015; 25: 284-91.

 

Watt T, Bjorner JB, Groenvold M, Cramon P, Winther KH, Hegedus L, Bonnema SJ, Rasmussen AK, Ware JE Jr, Feldt-Rasmussen U. Development of a short version of the thyroid-related patient-reported outcome ThyPRO. Thyroid 2015; 10: 1069-79.

 

Madsen UR, Groenvold M, Petersen MA, Johnsen AT. Comparing Three Different Approaches to the Measurement of Needs Concerning Fatigue in Advanced Cancer. Quality of Life Research 2015; 24(9): 2231-8.

 

Lund Rasmussen C, Klee Olsen M, Thit Johnsen A, Aagaard Petersen M, Lindholm H, Andersen L, Villadsen B, Groenvold M, Pedersen L. Effects of Melatonin on Physical Fatigue and Other Symptoms in Patients with Advanced Cancer in Palliative Care: A Double-Blind Placebo-controlled Crossover Trial. Cancer 2015; 121: 3727-36. doi: 10.1002/cncr.29563.

 

Ross L, Rottmann N, Andersen KK, Hoybye MT, Johansen C, Dalton SO. Distress after a psychosocial cancer rehabilitation course. Main effects and effect modification in a randomised trial at 12 months of follow-up. Acta Oncologica 2015; 54,  735-42.

 

Christiansen NS, Schmidt AW, Johansen CRoss L, Hvidt NC, Thygesen LC. Risk for cardiovascular disease among Seventh-day Adventists and Baptists in Denmark, 1977-2009. International Journal of Cardiology 2015; 185: 133-5.

 

 

Other publications

 

Hansen MB, Adsersen, M, Grønvold M. Dansk Palliativ Database: Årsrapport 2014. København: DMCG-PAL 2015.

 

Grønvold M. Definition af den palliative indsats. I: Palliativ medicin – en lærebog. Kap. 1; 29-33. København: 2015.

 

Grønvold M, Neergaard MA. Organisering af den palliative indsats i Danmark. I: Palliativ medicin – en lærebog. Kap. 2; 35-50. København: 2015.

 

Larsen H, Nielsen SP. At være professionel. I: Palliativ medicin – en lærebog. Kap. 5; 77-90. København: 2015.

 

Pedersen L. Fatigue. I: Palliativ medicin – en lærebog. Kap. 16; 237-47. København: 2015.

 

Grønvold M, Christensen CA, Johnsen AT. Ikke døds-, men (livs)vigtige samtaler. Kronik i Jyllands-Posten, 16.12.15.

 

 

 

2014

 

Peer-reviewed articles

 

Watt T, Groenvold M, Hegedüs L, Bonnema SJ, Rasmussen AK, Feldt-Rasmussen U, Bjorner JB. Few items in the thyroid-related quality of life instrument ThyPRO exhibited differential item functioning. Quality of Life Research 2014; 23: 327–338.

 

Winther KH, Watt T, Bjorner JB, Cramon P, Feldt-Rasmussen U, Gluud C, Gram J, Groenvold M, Hegedüs L, Knudsen NJ, Rasmussen AK, Bonnema SJ. The chronic autoimmune thyroiditis quality of life selenium trial (CATALYST): study protocol for a randomised clinical trial. Trials 2014 Apr 9;15(1):115.

 

Gamper EM, Groenvold M, Petersen MA, Young T, Costantini A, Aaronson N, Giesinger JM, Meraner V, Kemmler G, Holzner B; on behalf of the EORTC Quality of Life Group. The EORTC Emotional Functioning computer adaptive test (CAT): phase I-III of a cross-cultural item bank development. Psycho-Oncology 2014; 23(4):397-403.

 

Houmann LJ, Chochinov HM, Kristjanson LJ, Petersen MAa, Groenvold M. A prospective evaluation of Dignity Therapy in advanced cancer patients admitted to palliative care. Palliative Medicine 2014; 28(5): 448-58. doi: 10.1177/0269216313514883.

 

Strömgren AS, Niemann CU, Tange UB, Farholt H, Sonne NM, Ankersen L, Kristensen L, Bendixen L, Groenvold M, Petersen MA, Nordly M, Christrup L, Sjøgren P, Kurita GP. Quality of life and symptoms in patients with malignant diseases admitted to a comprehensive cancer centre. Supportive Care in Cancer 2014; 22: 1843-9.

 

Cramon P, Rasmussen AK, Bonnema SJ, Bjorner JB, Feldt-Rasmussen U, Groenvold M, Hegedüs L, Watt T. Development and implementation of PROgmatic: A clinical trial management system for pragmatic multi-centre trials, optimised for electronic data capture and patient-reported outcomes. Clinical Trials 2014; 11: 344-354.

 

Vejlgaard TB, Grønvold M, Jespersen BA, Sjøgren P. Update på udviklingen inden for palliativ medicin. Ugeskrift for Læger 2014; 176 (11A): V66260.

 

Lund L, Ross L, Petersen MAa, Groenvold M. The validity and reliability of the 'Cancer Caregiving Tasks, Consequences and Needs Questionnaire' (CaTCoN). Acta Oncologica 2014; 53: 966-74. doi: 10.3109/0284186X.2014.888496.

 

Lund L, Ross L, Petersen MAa, Groenvold M. Cancer caregiving tasks and consequences and their associations with caregiver status and caregiver's relation to the patient: a survey. BMC Cancer 2014; Jul 28; 14(1): 541 (1-13). doi: 10.1186/1471-2407-14-541

 

Juul T, Petersen MA, Holzner B, Laurberg S, Christensen P, Grønvold M. Danish population-based reference data for the EORTC QLQ-C30: associations with gender, age and morbidity. Quality of Life Research 2014; 23: 2183-2193.

 

Watt T, Cramon P, Frendl DM, Ware Jr. JE, ThyQoL Group: Hegedüs L, Bonnema SJ, Groenvold M, Bjorner JB, Rasmussen ÅK, Feldt-Rasmussen U. Assessing health-related quality of life in patients with benign non-toxic goitre. Best Practice & Research Clinical Endocrinology & Metabolism 2014; 28: 559-75.

 

Bové KB,   Watt T,   Vogel A,   Hegedüs L, Bjorner JB, Groenvold M, Bonnema S, Rasmussen AK, Feldt-Rasmussen U. Anxiety and depression are more prevalent in patients with Graves' disease than in patients with nodular goitre. European Thyroid Journal 2014; 3: 173-8.

 

Johnsen AT, Petersen MA, Gluud C, Lindschou J, Fayers P, Sjøgren P, Pedersen L, Neergaard MA, Vejlgaard TB, Damkier A, Nielsen JB, Strömgren AS, Higginson I, Groenvold M. Detailed statistical analysis plan for the Danish Palliative Care Trial (DanPaCT). Trials 2014; Sep 26; 15: 376. doi: 10.1186/1745-6215-15-376

 

Watt T, Cramon P, Hegedüs L, Bue Bjorner J, Joop Bonnema S, Krogh Rasmussen A, Feldt-Rasmussen U, Groenvold M. The thyroid-related quality of life measure ThyPRO has good responsiveness and ability to detect relevant treatment effects. Journal of Clinical Endocrinology & Metabolism 2014; 99: 3708-17.

 

Watt T, Groenvold M, Deng N, Gandek B, Feldt-Rasmussen U, Rasmussen AK, Hegedüs L, Bonnema SJ, Bjorner JB. Confirmatory factor analysis of the thyroid-related quality of life questionnaire ThyPRO. Health and Quality of Life Outcomes 2014; 12(1): 126.

 

Other publications

 

Hansen MB, Grønvold M. Dansk Palliativ Database: Årsrapport 2013. København: DMCG-PAL 2014.

 

Martinelli F, Zikos E, Ediebah D, Fitzsimmons D, Groenvold M, Bottomley A. Pioneering quality. European Oncology Nursing Society Magazine 2014: Spring; 28-29.



​2013


Peer-reviewed, original articles

Watt T, Groenvold M, Hegedüs L, Bonnema SJ, Rasmussen AK, Feldt-Rasmussen U, Bjorner JB. Few items in the thyroid-related quality of life instrument ThyPRO exhibited differential item functioning. Quality of Life Research 2014; 23: 327–338.
 
Watt T, Cramon P, Frendl DM, Ware Jr. JE, Hegedüs L, Bonnema SJ, Groenvold M, Bjorner JB, Rasmussen ÅK, Feldt-Rasmussen U. Assessing health-related quality of life in patients with benign non-toxic goitre. Best Practice & Research Clinical Endocrinology & Metabolism 2014 [Epub ahead of print]. 
 
Cramon P, Rasmussen AK, Bonnema SJ, Bjorner JB, Feldt-Rasmussen U, Groenvold M, Hegedüs L, Watt T. Development and implementation of PROgmatic: A clinical trial management system for pragmatic multi-centre trials, optimised for electronic data capture and patient-reported outcomes. Clinical Trials 2014 Feb 11 [Epub ahead of print].

Gamper A, Groenvold M, Petersen MA, Young T, Costantini A, Aaronson N, Giesinger JM, Meraner V, Kemmler G, Holzner B; on behalf of the EORTC Quality of Life Group. The EORTC Emotional Functioning computer adaptive test (CAT): phase I-III of a cross-cultural item bank development. Psycho-Oncology 2013 Nov 11 [Epub ahead of print].

Johnsen AT, Damkier A, Vejlgaard TB, Lindschou J, Sjøgren P, Gluud C, Neergaard MA, Petersen MA, Lundorff LE, Pedersen L, Fayers P, Strömgren AS, Higginson IJ, Groenvold M. A randomised, multicentre clinical trial of specialised palliative care plus standard treatment versus standard treatment alone for cancer patients with palliative care needs: the Danish palliative care trial (DanPaCT) protocol. BMC Palliative Care 2013; 12(1): 37 [Epub ahead of print].

Ross L, Petersen MA, Johnsen AT, Lundstroem LH, Groenvold M.Satisfaction with information provided to Danish cancer patients: Validation and survey results. Patient Education and Counselling 2013; 93(2): 239-47.

Johnsen AT, Petersen MA, Pedersen L, Houmann LJ, Groenvold M.Do advanced cancer patients in Denmark receive the help they need? A nationally representative survey of the need related to twelve frequent symptoms/problems, Psycho-Oncology 2013; 22(8): 1724-30.

 Petersen MA, Giesinger JM, Holzner B, Arraras JI, Conroy T, Gamper EM, King MT, Verdonck-de Leeuw IM, Young T, Groenvold M. Psychometric evaluation of the EORTC computerized adaptive test (CAT) fatigue item pool. Qual Life Res. 2013; 22(9): 2443-2454.

Scott NW, Etta JA, Aaronson NK, Bottomley A, Fayers PM, Groenvold M, Koller M, Kuliś D, Marais D, Petersen MA, Sprangers MA. An evaluation of the response category translations of the EORTC QLQ-C30 questionnaire. Quality of Life Research 2013; 22(6): 1483-90. 

Werner, M. U., Petersen, M. A., & Bischoff, J. M. Test-retest studies in quantitative sensory testing: a critical review. Acta Anaesthesiol.Scand. 2013 Aug 05. [Epub ahead of print]

Ross L, Thomsen BL, Boesen SH, Frederiksen K, Lund R, Munk C, Dalton SO, Bidstrup PE, Kjær SK, Tjønneland A, Johansen C. Social relations and smoking abstinence among ever smokers. A report from two large population-based Danish cohort studies. Scand J Publ Health 2013 Jul;41(5):531-40.

Kurita GP, Tange UB, Farholt H, Sonne NM, Strömgren AS, Ankersen L, Kristensen L, Bendixen L, Grønvold M, Petersen MA, Nordly M, Christrup L, Niemann C, Sjøgren P. Pain characteristics and management of inpatients admitted to a comprehensive cancer centre: a cross-sectional study. Acta Anaesthesiologica Scandinavica. 2013 Jan 22 [Epub ahead of print].

Petersen, M. Aa., Aaronson, N. K., Arraras, J. I., Chie, W.-C., Conroy, T., Costantini, A. et al (2013). The EORTC computer-adaptive tests measuring physical functioning and fatigue exhibited high levels of measurement precision and efficiency. Journal of Clinical Epidemiology, 66(3): 330-339.

Ross L, Petersen MA, Johnsen AT, Lundstrøm LH, Groenvold M.Cancer patients' evaluation of communication: a report from the population-based study 'The Cancer Patient's World'. Support Care Cancer 2013;21(1):235-244.

Other publications 

Hansen MB, Grønvold M. Dansk Palliativ Database: Årsrapport 2012. København: DMCG-PAL 2013.

Spielmann MEMJ, Neergaard MA, Rix BA, Johnsen AT, Korngut S, Timm, H, Grønvold M. En barometerundersøgelse af kræftpatienters oplevelser og behov I den sene palliative fase. Omsorg – Nordisk Tidsskrift for Palliativ Medicin 2013; 30: 65-70.

2012


Ph.D. thesis

Lundstrøm LH. The patient perspective on continuity
of cancer care. Copenhagen: University of Copenhagen, 2012.

Peer-reviewed, original articles

Lund L, Ross L, Groenvold M. The initial development of the “Cancer Caregiving Tasks, Consequences and Needs Questionnaire” (CaTCoN). Acta Oncol 2012;51(8):1009-1019.
 
Ross L, Petersen MA, Johnsen AT, Lundstrøm LH, Lund L, Groenvold M. Using mixed methods to assess how cancer patients’ needs in relation to their relatives are met in the Danish health care system. A report from the population-based study ‘The Cancer Patient’s World’. Support Care Cancer 2012;20(12):3211-3220.

Kurita, G. P. , de Mattos Pimenta, C. A. , Braga, P. E. , Frich, L. , Jørgensen, M. M. , Nielsen, P. R. , Højsted, J. & Sjøgren, P.Cognitive function in patients with chronic pain treated with opioids: characteristics and associated factors. Acta Anaesthesiologica Scandinavica 2012; 56: 1257-66.

Thygesen LC, Hvidt NC, Hansen HP, Hoff A, Ross L, , Johansen C.Cancer incidence among Danish Seventh-Day Advetists and Baptists. Cancer Epidemiology 2012;36(6):513-518.

Grønvold M, Hansen MB, Jensen AB, Neergaard MA, Rasmussen M, Sjøgren P. Dansk Palliativ Database. Ugeskrift for Læger 2012; 174: 2530.

Thygesen CL, Hvidt NC, Juel K, Hoff A, Ross L, Johansen C. Cohort profile: The Danish Religious Societies Health Study. Int J Epidemiol 2012;41(5):1248-55.

Thaysen HV, Jess P, Laurberg S, Groenvold M. Validation of the Danish version of the disease specific instrument EORTC QLQ-CR38 to assess health-related quality of life in patients with colorectal cancer. Health and Quality of Life Outcomes 2012:  10: 150.

Rottmann N, Dalton SO, Bidstrup PE, Würtzen H, Høybye MT, Ross L, Christensen J, Frederiksen K, Hansen DG, Johansen C.No improvement in distress and quality of life following psychosocial cancer rehabilitation. A randomized trial. Psycho-Oncology 2012 May;21(5): 505-14.

Gundy CM, Fayers PM, Groenvold M, Petersen MA, Scott NW, Sprangers MA, Velikova G, Aaronson NK. 
Comparing higher order models for the EORTC QLQ-C30. Qual Life Res. 2012: 21(9):1607-17.

 Johnsen AT, Ross L, Petersen MA, Lund L, Groenvold M. The relatives' perspective on advanced cancer care in Denmark. A cross-sectional survey. Support Care Cancer 2012;20(12):3179-3188.

Ross L, Lundstrøm LH, Petersen MA, Johnsen AT, Watt T, Groenvold M. Using method triangulation to validate a new instrument (CPWQ-com) assessing cancer patients' satisfaction with communication. Cancer Epidemiol. 2012;36(1):29-35.

Ross L, Petersen MA, Johnsen AT, Lundstroem LH, Carlsen K, Groenvold M. Factors associated with Danish cancer patients' return to work. A report from the population-based study 'The Cancer Patient's World'. Cancer Epidemiol. 2012;36(2):222-229.

Ross L, Lundstroem LH, Petersen MA, Johnsen AT, Groenvold M.Are different groups of cancer patients offered rehabilitation to the same extent? A report from the population-based study ‘The Cancer Patient’s World’. Support Care Cancer 2012;20(5):1089-1100.

Other publications 

Grønvold M, Hansen MB, Rasmussen M. Dansk Palliativ Database: Årsrapport 2011. København: DMCG-PAL 2012.

Velikova G, Coens C, Efficace F, Greimel E, Groenvold M, Johnson C, Singer S, van de Poll-Franse L, Young T, Bottomley A, on behalf of EORTC Quality of Life Group and EORTC Quality of Life Department. Health-Related Quality of Life in EORTC clinical trials - 30 years of progress from methodological developments to making a real impact on oncology practice. European Journal of Cancer Supplements 2012;10: 141-149.

Korngut S, Johnsen AT, Spielmann M, Neergaard MA, Grønvold M. Kræftpatienters oplevelser i den palliative fase af sygdomsforløbet. København: Kræftens Bekæmpelse; 2012, 1-98. ISBN 978-87-7064-183-8.

2011


Peer-reviewed, original articles

Kaasa S, Apolone G, Klepstad P, Loge JH, Hjermstad MJ, Corli O, Strasser F, Heiskanen T, Costantini M, Zagonel V, Groenvold M, Fainsinger R, Jensen MP, Farrar J, McQuay H, Rothrock NE, Cleary J, Sepulveda C, Deguines C, Caraceni A, on behalf of the European Palliative Care Research Collaborative (EPCRC) and the European Association for Palliative Care Research Network (EAPC RN). Expert conference on cancer pain assessment and classification, the need for international consensus: working proposals on international standards. BMJ Supportive & Palliative Care 2011;1: 281-287.

Grønvold M, Neergaard MA, Sjøgren P.  Sammenhængende palliativ indsats i sundhedsvæsenet. Ugeskrift for Læger 2011;173: 1728-1731.

Schultz SL, Dalton, SO, Christensen J, Carlsen K, Ross L, Johansen C. Factors correlated with fatigue in breast cancer survivors undergoing a rehabilitation course, Denmark, 2002-2005. Psycho-Oncology 2011;20(4):352-360.

Thomsen TG, Rydahl-Hansen S, Wagner L. How to be a patient in a palliative life experience? – A qualitative study to enhance knowledge about coping abilities in advanced cancer patients. Journal of  Psychosocial Oncology. 2011; 29(3):254-258.

Petersen M. Aa., Groenvold, M., Aaronson, N. K., Chie, W.-C., Conroy, T., Costantini, A. et al. Development of computerized adaptive testing (CAT) for the EORTC QLQ-C30 physical functioning dimension. Quality of Life Research. 2011; 20(4):479-490.

Johnsen AT, Petersen MA, Pedersen L, Groenvold M.Development and validation of the three-levels-of-needs questionnaire (3LNQ) for self-assessment of palliative needs in cancer patients. J Pain Sympt Manage. 2011; 41: 1025-1039.

Giesinger JM, Petersen MA, Groenvold M, Aaronson NK, Arraras JI, Conroy T, Gamper EM, Kemmler G, King MT, Oberguggenberger AS, Velikova G, Young T, Holzner B, EORTC Quality of Life Group. Cross-cultural development of an item list for computer-adaptive testing of fatigue in oncological patients. Health Qual Life Outcomes. Epub ahead of print 2011 Mar 29;9(1):19. 

Tholstrup D, Brown P, Jurlander J, Jeppesen PB, Groenvold M.Quality of life in diffuse large B-cell lymphoma patients treated with dose-dense chemotherapy was only affected temporarily. Leuk Lymphoma. 2011; 52: 400-8.

Lundstrøm LH, Johnsen AT, Ross L, Petersen MA, Groenvold M.Cross-sectorial cooperation and supportive care in general practice: cancer patients' experiences. Fam Pract. Epub ahead of print Mar 22 2011.

Ibfelt E, Rottmann N, Kjaer T, Høybye MT, Ross L, Frederiksen K, Johansen C, Dalton SO. No change in health behavior, BMI or self-rated health after a psychosocial cancer rehabilitation: Results of a randomized trial. Acta Oncol. 2011; 50(2):289-98.

Kjaer T, Johansen C, Ibfelt E, Christiansen J, Rottmann N, Terp M, Ross L, Dalton SO. Impact of symptom burden on quality of life in cancer survivors participating in the Danish cancer rehabilitation-program FOCARE – a longitudinal study. Acta Oncol 2011; 50(2):223-32.

2010


Ph.D. thesis

Thomsen, TG. Advanced cancer patients as participants in their own lives - A grounded Theory study og coping from a patient perspective. Faculty of Health Sciencies, University of Southern Denmark, 2010. t@grotheonline.com 

Houmann, LJ. Dignity Therapy in Denmark - Prevalence of loss of dignity in Danish patients with incurable cancer, and a study of implementation and evaluation of Dignity Therapy in Denmark. Copenhagen: University of Copenhagen, 2010.

Peer-reviewed, original articles

Thomsen TG, Rydahl-Hansen S, Wagner L. A review of potential factors relevant to coping in patients with advanced cancer. Journal of clinical nursing 2010; June 30:1-17.

Rydahl-Hansen S. Suffering – it´s terms and mode of expression - as experienced by patients suffering from advanced cancer. Tidsskrift for forskning i Sygdom og Samfund. 2010(12):75-96.

Høybye MT, Dalton SO, Christensen J, Ross L, Kuhn KG, Johansen C. Social and psychological determinants of participation in internet-based cancer support groups. Support Care Cancer 2010; 18:553-560.

Andersen LG, Groenvold M, Jørgensen T, Aadahl M.
Construct validity of a revised Physical Activity Scale and testing by cognitive interviewing. Scand J Public Health. 2010 Nov;38(7):707-14. 

Houmann LJ, Rydahl-Hansen S, Chochinov HM, Kristjanson LJ, Groenvold M. Testing the feasibility of the Dignity Therapy interview: adaptation for the Danish culture.  BMC Palliat Care. 2010; 9(1):21 (1-11).

Groenvold M. Health-related quality of life in early breast cancer: Methodological and clinical studies. Danish Medical Bulletin 2010; 57(9): B4184 (1-58).

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, Gundy C, Koller M, Petersen MA, Sprangers MA on behalf of the EORTC and the Quality of Life Cross-Cultural Meta-Analysis Group. Differential item functioning (DIF) analyses of health-related quality of life instruments using logistic regression. Health and Quality of Life Outcomes 2010; 8: 81.

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, Gundy C, Koller M, Petersen MA, Sprangers MA on behalf of the EORTC and the Quality of Life Cross-Cultural Meta-Analysis Group. Interpretation of differential item functioning (DIF) analyses using external review. Expert Review of Pharmacoeconomics and Outcomes Research 2010; 10: 253-8.

Peuckmann V, Groenvold M, Ekholm O, Rasmussen NK, Christiansen P, Moller S, Sjogren P. Livskvalitet mere end fem år efter brystkræft – sekundærpublikation. Ugeskrift for Læger 2010; 172: 614-616.

Petersen MA, Groenvold M, Aaronson NK, Chie WC, Conroy T, Costantini A, Fayers P, Helbostad J, Holzner B, Kaasa S, Singer S, Velikova G, Young T; on behalf of the EORTC Quality of Life Group. Development of computerised adaptive testing (CAT) for the EORTC QLQ-C30 dimensions - General approach and initial results for physical functioning. European Journal of Cancer 2010; 46(8), 1352-1358.

Watt T, Hegedüs L, Groenvold M, Bjorner JB, Rasmussen AK, Bonnema SJ, Feldt-Rasmussen U. Validity and reliability of the novel thyroid-specific quality of life questionnaire, ThyPRO. European Journal of Endocrinology 2010; 162: 161-167.

2009


D.M.Sci. thesis

Groenvold M. Health-related quality of life in early breast cancer: Methodological and clinical studies. Copenhagen: University of Copenhagen, 2009.

Peer-reviewed, original articles

Rydahl-Hansen S. Suffering - as expressed in nursing diagnosis within palliative care. Nordic Journal of Nursing Research 2009,(1):4-8. 

Rydahl-Hansen S. Signs of suffering as expressed by patient hospitalized in a palliative care unit.Nordic Journal of Nursing Research. 2009;(3):42-46. 

Petersen MAa, Pedersen L, Groenvold M. Does non-participation in studies of advanced cancer lead to biased quality of life scores? Journal of Palliative Medicine 2009; 12: 1023-1028.

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, Gundy C, Koller M, Petersen MA, Sprangers MA on behalf of the EORTC and the Quality of Life Cross-Cultural Meta-Analysis Group. The practica​l impact of differential item functioning (DIF) analyses in a health-related quality of life instrument. Quality of Life Research 2009; 18:1125-1130.

Johnsen AT, Petersen MA, Pedersen L, Groenvold M. Symptoms and problems in a nationally representative sample of advanced 
cancer patients. Palliative Medicine 2009; 23: 491-501.

Johnsen AT, Tholstrup D, Petersen MA, Pedersen L, Groenvold M. Health-related quality of life in a nationally representative sample of haematological patients. European Journal of Haematology 2009; 83: 139-148.

Watt T, Bjorner JB, Groenvold M, Rasmussen AK, Bonnema SJ, Hegedüs L, Feldt-Rasmussen U. Establishing construct validity for the thyroid-specific patient-reported outcome measure (thyPRO): an initial examination. Quality of Life Research 2009; 18: 483-496.

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, Gundy C, Koller M, Petersen MA, Sprangers MA. Differential item functioning (DIF) in the EORTC QLQ-C30: a comparison of baseline, on-treatment and off-treatment data. Quality of Life Research. 2009; 18: 381-388.

Peuckmann V, Ekholm O, Rasmussen NK, Groenvold M, Christiansen P, Moller S, Eriksen J, Sjogren P. Chronic pain and other sequelae in long-term breast cancer survivors: Nationwide survey in Denmark. European Journal of Pain. 2009; 13: 478-485.

Peuckmann V, Ekholm O, Sjogren P, Rasmussen NK, Christiansen P, Moller S, Groenvold M. Health care utilization and characteristics of long-term breast cancer survivors: Nationwide survey in Denmark. European Journal of Cancer. 2009; 45: 625-633. 

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, koller M, Petersen MA, Sprangers MA & Gundy C. A simulation study provided sample size guidance for differential item functioning (DIF) studies using short scales. Journal of Clinical Epidemiology. 2009; 62: 288-295.

Faber MT, Pedersen C, Grønvold M. Kontaktpersonordninger til kræftpatienter på danske hospitalsafdelinger. Ugeskrift for Læger 2009; 171: 3363-3367.

Peer-reviewed proceedings and reviews; book chapters

Rydahl-Hansen S. Den fænomenologisk videnskabelige analysemetodes muligheder og begrænsninger. Tidsskrift for Sygeplejeforskning. 2009;(3):13-19.

Pedersen L, Palshof T. Farmakologiske behandlingstiltag for cancer relateret fatigue – Statusartikel. Ugeskift for Læger 2009; 39: 2830-33

Other publications 

Neergard MA, Grønvold M. Forskning i palliation i Danmark. Omsorg – Nordisk Tidsskrift for Palliativ Medicin 2009; 26: 9-17.

Rydahl- Hansen S. Transformation af evidensbaseret viden til klinisk praksis. Tidsskrift for Sygeplejeforskning, 2009;2:2. 

Groenvold M. Book review: Addington-Hall JM, Bruera E, Higginson I, Payne S (eds.). Research Methods in Palliative Care. European Journal of Cancer Care 2009 (Epub ahead of print).

2008


Ph.D. thesis

Johnsen AT. Palliative needs in Danish patients with advanced cancer. Copenhagen: University of Copenhagen, 2008.

Peer-reviewed, original articles

Bidstrup PE, Frederiksen K, Siersma V, Mortensen EL, Ross L, Vinther-Larsen M, Gronbaek M, Johansen C. Social-cognitive and school factors in lifetime smoking among adolescents. Cancer Epidemiology Biomarkers & Prevention 2008 Aug;17(8):1862-71.

Østergaard Jensen B, Rydahl-Hansen S. Mini Mental State Examination - en screeningstest for kognitiv dysfunktion. Tidsskrift for Sygeplejeforskning. 2008;(1):18-23

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, Koller M, Petersen MA, Sprangers MA on behalf of the EORTC and the Quality of Life Cross-Cultural Meta-Analysis Group. The relationship between overall quality of life and its subdimensions in cancer patients 
was influenced by culture: analysis of an international database. Journal of Clinical Epidemiology 2008; 61: 788-795.

Watt T, Rasmussen AK, Groenvold M, Bjorner JB, Watt SH, Bonnema SJ, Hegedüs L, Feldt-Rasmussen U. Improving a newly developed patient-reported outcome for thyroid patients, using cognitive interviewing. Quality of Life Research 2008;17: 1009-1017.

Grønvold M, Petersen MA, Idler E, Bjorner JB, Fayers PM, Mouridsen HT. Psykisk velbefindende og træthed prædikterede overlevelse efter brystkræft. Sekundærpublikation. Ugeskrift for Læger 2008; 170: 844-847.

Peer-reviewed proceedings and reviews; book chapters

Grønvold M. Metoder i livskvalitetsforskning. Ugeskrift for Læger 2008; 170: 825-829.

Grønvold M. Helbredsrelateret livskvalitet ved kræft. Ugeskrift for Læger 2008; 170: 838-843.

Watt T, Feldt-Rasmussen U, Rasmussen ÅK, Hegedus L, Bonnema S, Grønvold M, Bjørner JB. Måling af helbredsrelateret livskvalitet hos patienter med thyroideasygdomme. Ugeskrift for Læger 2008; 170: 850-852.

Other publications 

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, Gundy C, Koller M, Petersen MA, Sprangers MAG.EORTC QLQ-C30 Reference Values. Brussels: EORTC; 2008.

Rydahl-Hansen S. Fra palliativ medicin og symptomkontrol til palliativ indsats. Nordisk Tidsskrift for Palliativ Medicin. Omsorg 2008;(2): 39-43.

2007


Peer-reviewed, original articles

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, Koller M, Petersen MA, Sprangers MA on behalf of the EORTC and the Quality of Life Cross-Cultural Meta-Analysis Group. The use of differential item functioning analyses to identify cultural differences in responses to the EORTC QLQ-C30. Quality of Life Research 2007; 16: 115-129.

Mortensen OS, Bjorner JB, Newman B, Oldenburg B, Groenvold M, Madsen JK, Andersen HR. Gender differences in health-related quality of life following ST-elevation myocardial infarction: women and men do not benefit from primary PCI to the same degree. European Journal of Cardiovascular Prevention and Rehabilitation 2007; 14: 37-43. 

Groenvold M, Fayers PM, Petersen MA, Sprangers MAG, Aaronson NK, Mouridsen HT. Breast cancer patients on adjuvant chemotherapy report a wide range of problems not identified by health-care staff. Breast Cancer Research and Treatment 2007; 103: 185-195.

Peuckmann V, Ekholm O, Rasmussen NK, Møller S, Groenvold M, Christiansen P, Eriksen J, Sjøgren P. Health related quality of life in long term breast cancer survivors: nationwide survey in Denmark. Breast Cancer Research and Treatment 2007; 104: 39-46.

Petersen MAa, Pedersen L, Groenvold M. Does the agreement of patient and physician assessments of health related quality of life in palliative care depend on patient characteristics? Palliative Medicine 2007; 21: 289-94.

Watt T, Hegedüs L, Rasmussen AK, Groenvold M, Bonnema S, Bjorner JB, Feldt-Rasmussen U. Which domains of thyroid-related quality of life are most relevant? Patients and clinicians provide complementary perspectives. Thyroid 2007; 17: 647-654.

Madsen LG, Hansen JM, Groenvold M, Bytzer P. The validity of a symptom diary in ratings of dyspepsia measured against a detailed interview: do patients and clinicians agree in their assessment of symptoms? Alimentary Pharmacology & Therapeutics 2007; 26: 905-912.

Groenvold M, Petersen MA, Idler E, Bjorner JB, Fayers PM, Mouridsen HT. Psychological distress and fatigue predicted recurrence and survival in primary breast cancer patients. Breast Cancer Research and Treatment 2007; 15: 209-219.

Peer-reviewed proceedings and reviews; book chapters

Grønvold M, Jensen AB. Patienters oplevelse af medicinsk brystkræftbehandling. Ugeskrift for Læger 2007; 3114-3117.

Grønvold M, Sjøgren P. Forskning i palliativ indsats. Ugeskrift for Læger 2007; 169: 3740-3742.

Vejlgaard TB, Pedersen L. Specialiseret palliativ medicin... hvorfor, hvor og hvordan? Ugeskrift for Læger 2007; 169: 3742-3745.

Grønvold M, Strömgren AS. Symptomatologi blandt kræftpatienter, der modtager palliativ indsats – måling, forekomst og forløb. Ugeskrift for Læger 2007; 169: 3748-3750. 

Pedersen L. Behandling af fatigue (patologisk træthed) hos kræftpatienter - med fokus på kræftpatienter i den palliative fase. Ugeskrift for Læger 2007; 169: 3762-3765.

Pedersen L, Birket-Schmidt M. Depression hos kræftpatienter - med fokus på kræftpatienter i den palliative fase. Ugeskrift for Læger 2007; 169: 3765-3768.

2006


Ph.D. thesis

Goldschmidt D. Evaluation of palliative home care: views of patients, carers, general practitioners, and district nurses. Forsvaret den 20.januar 2006 ved Københavns Universitet, Det Sundhedsvidenskabelige Fakultet.

M.Sc.thesis

Faber MT, Pedersen C. Kræftpatientens faste holdepunkt. En undersøgelse af kontaktpersonordninger til kræftpatienter på danske hospitalsafdelinger. Kandidatuddannelsen i Folkesundhedsvidenskab, Københavns Universitet, 2006.

Peer-reviewed, original articles

Petersen MAa, Groenvold M, Aaronson NK, Blazeby J, Brandberg Y, de Graeff A, Fayers P, Hammerlid E, Sprangers MA, Velikova G, Bjorner JB for the European Organisation for Research and Treatment of Cancer Quality of Life Group. Item response theory was used to shorten EORTC QLQ-C30 scales for use in palliative care. Journal of Clinical Epidemiology 2006; 59: 36-44.

Groenvold M, Petersen MAa, Aaronson NK, Arraras JI, Blazeby JM, Bottomley A, Fayers PM, de Graeff A, Hammerlid E, Kaasa S, Sprangers MAG, Bjorner JB for the EORTC Quality of Life Group. The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative care. European Journal of Cancer 2006; 42(1): 55-64.

Groenvold M, Fayers PM, Petersen MA, Mouridsen HT.Chemotherapy versus ovarian ablation as adjuvant therapy for breast cancer: impact on health-related quality of life in a randomized trial. Breast Cancer Research and Treatment 2006; 98: 275-284.

Petersen MAa, Groenvold M, Aaronson NK, Fayers PM, Sprangers MA, Bjorner JB for the European Organisation for Research and Treatment of Cancer Quality of Life Group. Multidimensional computerized adaptive testing of the EORTC QLQ-C30: basic developments and evaluations. Quality of Life Research 2006; 15: 315-329.

Stromgren AS, Sjogren P, Goldschmidt D, Petersen MAa, Pedersen L, Groenvold M. Symptom priority and treatment outcome in specialized palliative care. Journal of Pain and Symptom Management 2006; 31: 199-206.

Petersen MAa, Larsen H, Pedersen L, Sonne N, Groenvold M.Comparison of patients’ and physicians’ assessment of the health related quality of life of palliative care patients. European Journal of Cancer 2006; 42: 1159-66. Discussed in Nature Clinical Practice Oncology by E Bruera.

Goldschmidt D, Schmidt L, Krasnik A, Groenvold M. Expectations to and evaluation of a palliative home-care team as seen by patients and carers. Journal of Supportive Care in Cancer 2006; 14: 1232-1240.

Munch TN, Stromgren AS, Pedersen L, Petersen MAa, Hoermann L, Groenvold M. Multidimensional measurement of fatigue in advanced cancer patients in palliative care – an application of the Multidimensional Fatigue Inventory. Journal of Pain and Symptom Management 2006; 31: 533-541.

Scott NW, Fayers PM, Bottomley A, Aaronson NK, de Graeff A, Groenvold M, Koller M, Petersen MA, Sprangers MA on behalf of the EORTC and the Quality of Life Cross-Cultural Meta-Analysis Group. Comparing translations of the EORTC QLQ-C30 using differential item functioning analysis. Quality of Life Research 2006; 15: 1103-1115.

Peer-reviewed proceedings and reviews; book chapters

Grønvold M, Nielsen SM, Petersen MAa. Er der social ulighed i forekomsten af fysiske og psykiske symptomer blandt patienter, der får kemoterapi mod brystkræft? I: Vallgårda S, Koch L. Forskel og lighed i sundhed og sygdom. København: Munksgaard Danmark; 2006: 109-122.

Watt T, Groenvold M, Rasmussen AK, Bonnema SJ, Hegedus L, Bjorner JB, Feldt-Rasmussen U. Quality of life in patients with benign thyroid disorders. A review. European Journal of Endocrinology 2006; 154: 501-510.

Rydahl-Hansen S. Den totale smerte. Klinisk Sygepleje 2006; 20: 15-23.

Rydahl-Hansen S, Elsborg J, Lund-Jacobsen M, Zielke S. Strategi for klinisk sygeplejeforskning – erfaringer fra Bispebjerg Hospital. Sygeplejersken 2006; (20): 48-53.

Other publications

Petersen MAa, Groenvold M. Predictors of the extent of agreement between terminally ill cancer patients and their family caregivers in Taiwan (commentary). Quality of Life Research 2006; 15: 405-406.

Groenvold M, Petersen MAa, Aaronson NK, Arraras JI, Blazeby JM, Bottomley A, Fayers PM, de Graeff A, Hammerlid E, Kaasa S, Sprangers MAG, Bjorner JB. EORTC QLQ-C15-PAL: the new standard in the assessment of health-related quality of life in advanced cancer? (Response to Echteld MA et al., Palliative Medicine 2006; 20: 1-2.) Palliative Medicine 2006; 20 (2) 59-61.

Grønvold M, Pedersen C, Jensen CR, Faber MT, Johnsen AT. Kræftpatientens verden - en undersøgelse af, hvad kræftpatienter har brug for. Kræftens Bekæmpelse 2006: 1-275.

Johnsen AT, Jensen CR, Pedersen C, Grønvold M.Kræftpatientens verden - en undersøgelse af, hvilke problemer danske kræftpatienter oplever: Litteraturgennemgang og interviews. Kræftens Bekæmpelse 2006: 1-54.

Scott NW, Fayers PM, Bottomley A, Aaronson NK, de Graeff A, Groenvold M, Koller M, Petersen MA, Sprangers MA on behalf of the EORTC and the Quality of Life Cross-Cultural Meta-Analysis Group. Response to Commentary on Comparing translations of the EORTC QLQ-C30 using differential item functioning analysis. Quality of Life Research 2006; 15: 1119-1120.

Nåden D, Fredriksson L, Gjengedal E, Rydahl-Hansen S (ed). Nordic College of Caring Science – 25 år. Jubilæumsskrift. Nordic College of Caring Science 2006.

Rydahl-Hansen S. Sorgens Fugle –dvd. I: Heldam MB (red). Min mand døde. Min kone døde. DK4. Kroghs Forlag 2006. 

2005


Peer-reviewed, original articles

Goldschmidt D, Groenvold M, Johnsen AT, Stromgren AS, Krasnik A, Schmidt L. Cooperating with a palliative home-care team: expectations and evaluations of GPs and district nurses. Palliative Medicine 2005; 19: 241-250.

Jonler M, Nielsen OS, Groenvold M, Hedlund PO, Damber L, Hedelin H, Waldén M, and the SPCG5 Study Group. Quality of life in patients with metastatic prostate cancer. Results from the Scandinavian Prostate Cancer Group (SPCG) Study 5. Scand J Urol and Nephrol 2005; 39: 42-48.

Stromgren AS, Sjogren P, Goldschmidt D, Petersen MAa, Pedersen L, Hoermann L, Groenvold M. A longitudinal study of palliative care: patient-evaluated outcome and impact of attrition. Cancer 2005; 103: 1747-55. 

Petersen MAa, Groenvold M, Bjorner JB, Aaronson NK, Brenne E, Fayers PM, Nielsen JD, Sprangers MA for the European Organisation for Research and Treatment of Cancer Quality of Life Group. Scoring based on item response theory did not improve the measurement ability of the EORTC QLQ-C30 scales. Journal of Clinical Epidemiology 2005; 58: 902-8.

Rydahl-Hansen S. Hospitalized patients experienced suffering in life with incurable cancer. Scandinavian Journal of Caring Sciences 2005; 19: 213-222.

Mortensen OS, Bjorner JB, Oldenburg B, Newman B, Groenvold M, Madsen JK, Andersen HR on behalf of the DANAMI-2 Study Group. Health-related quality of life one month after thrombolysis or primary PCI in patients with ST-elevation infarction. A DANAMI-2 sub-study. Scandinavian Cardiovascular Journal 2005; 39: 206-212.

Peer-reviewed proceedings and reviews; book chapters
Groenvold M, Petersen MA. The role and use of differential item functioning analysis in clinical trials. In: Fayers PM, Hays RD. Assessing Quality of Life in Clinical Trials: Methods and Practice (2nd ed.). Oxford: Oxford University Press; 2005: 195-208.

Rydahl Hansen S, Koblen A. Mundpleje. I: Bydam J, Hansen MJ. Lærebog i sygeplejens fundament. København: Nyt Nordisk Forlag Arnold Busk; 2005: 326-334. 

Other publications

Houmann LJ, Grønvold M, Rydahl-Hansen S. At kunne leve med værdighed som døende: Chochinovs værdighedsmodel og værdighedsterapi. Omsorg – Nordisk Tidsskrift for Palliativ Medisin 2005; 22 (2): 24-28.

Honoré C. Frivillig indsats i Palliativ medicinsk afdeling, Bispebjerg Hospital. Evalueringsrapport december 2005. København: Bispebjerg Hospital; 2005: 1-96. 

2004


Ph.D. thesis
Jensen PT. Health-related quality of life after cervical cancer. Forsvaret den 17. september 2004 ved Københavns Universitet, Det Sundhedsvidenskabelige Fakultet. 

Peer-reviewed, original articles
Bjorner JB, Petersen MA, Groenvold M, Aaronson NK, Ahlner-Elmquist M, Arraras JI, Fayers P, Jordhoy M, Sprangers MAG, Young T the European Organisation for Research and Treatment of Cancer Quality of Life Group. Use of item response theory to develop a shortened version of the EORTC QLQ-C30 emotional function scale. Quality of Life Research 2004; 13: 1683-1697.

Hansen SR. Hospitalsindlagte patienters oplevede lidelse i livet med uhelbredelig kræft. Tidsskrift for Sygeplejeforskning. 2004(2):13-17.

Jensen PT, Groenvold M, Klee MC, Thranov I, Petersen MAa, Machin D. Early stage cervical cancer, radical hysterectomy and sexual function: a longitudinal study. Cancer 2004; 100 (1): 97-106.

Jensen P, Klee MC, Groenvold M. Validation of the Sexual function-Vaginal Changes Questionnaire through combined qualitative and quantitative assessment of patient-observer agreement. Psycho-Oncology 2004; 13: 577-592.

Noerholm V, Groenvold M, Watt T, Bjorner JB, Rasmussen N-A, Bech P. Quality of life in the Danish general population – normative data and validity of WHOQOL-BREF using Rasch and item response theory models. Quality of Life Research 2004; 13: 531-540.

Stromgren AS, Groenvold M, Petersen MA, Goldschmidt D, Pedersen L, Spile M, Irming-Petersen G, Sjogren P. Pain characteristics and treatment outcome for advanced cancer patients during the first week of specialized palliative care. Journal of Pain and Symptom Management 2004; 27 (2): 104-113.

Peer-reviewed proceedings and reviews; book chapters
Hansen SR, Mølholm B. Sygepleje til patienter med kræftsår. Sygeplejersken 2004;26:24-33.

Other publications
Pedersen L, Vejlgaard T, Leikersfeld. Nordisk teoretisk uddannelse i palliativ medicin. Omsorg – Nordisk Tidsskrift for Palliativ Medisin 2004; 21: 39-43.

Grønvold M. Perspektiver på forskning i palliative indsats – lokalt og i nordisk sammenhæng. Omsorg – Nordisk Tidsskrift for Palliativ Medisin 2004; 21: 44-48.

Hansen SR. Lidelsen som udgangspunkt for den palliative indsats. Omsorg – Nordisk Tidsskrift for Palliativ Medisin 2004; 21: 49-52.

​2003


Ph.D. thesis
Rydahl Hansen S. Hospitalsindlagte patienters oplevede lidelse – i livet med uhelbredelig kræft. Institut for Sygeplejevidenskab, Det Sundhedsvidenskabelige fakultet, Aarhus Universitet, 2003. Forsvaret 29. august 2003.

Peer-reviewed, original articles
Jensen PT, Groenvold M, Klee MC, Thranov I, Petersen MA, Machin D. A longitudinal study of sexual function and vaginal changes after radiotherapy for cervical cancer. International Journal of Radiation Oncology Biology Physics 2003; 56: 937-49.

Petersen MA, Groenvold M, Bjorner JB, Aaronson NK, Conroy T, Cull A, Fayers PM, Hjermstad MJ, Sprangers MAG, Sullivan M, for the European Organisation for Research and Treatment of Cancer Quality of Life Group. Use of differential item functioning analysis to validate translations of a health status questionnaire. Quality of Life Research 2003; 12: 373-85.

Peer-reviewed proceedings and reviews; book chapters
Pedersen L, Munch TN, Groenvold M. Management of fatigue in cancer patients – focusing on cancer patients in the palliative phase. European Journal of Palliative Care 2003; 10 (6): 225-229 (review).

Sjøgren P, Pedersen L. Cancersmertetilstande – epidemiologi, ætiologi og behandling. I: Jensen TS, Dahl JB, Arendt-Nielsen L (red.). Smerter – en lærebog. FADL’s Forlag 2003: 303-16.

2002


Peer-reviewed, original articles
Strömgren AS, Goldschmidt D, Groenvold M, Petersen, MAa, Jensen PT, Pedersen L, Hoermann L, Helleberg C and Sjögren P.Self-assessment in cancer patients referred to palliative care: a study of feasibility and symptom epidemiology. Cancer 2002; 94 (2): 512-520.

Jensen PT, Klee, MC, Groenvold, M. Validation of a questionnaire for self-rating of urological and gynaecological morbidity after treatment of gynaecological cancer. Radiother Oncol 2002;65(1):29-38.

Andersen G, Jensen N-H, Christrup L, Hansen SH, Sjogren P.Pain, sedation and morphine metabolism in cancer patients during long-term treatment with sustained-release morphine. Pall Med 2002;16:107-14.

Andersen G, Christrup LL, Sjogren P, Hansen SH, Jensen NH.Changing M3G/M6G ratios and pharmacodynamics in a cancer patient during long-term morphine treatment. J Pain Symptom Manage 2002 Feb;23(2):161-4

Strömgren AS, Groenvold M, Pedersen L, Olsen AK, Sjogren P.Symptomatology of cancer patients in palliative care: Content validation of self-assessment questionnaires against medical records. Eur J Cancer 2002;38:788-94.

Aadahl M, Hansen BA, Kirkegaard P, Groenvold M. Fatigue and physical function after orthotopic liver transplantation. Liver Transpl 2002;8:251-9.

Peer-reviewed proceedings and reviews; book chapters
Jensen PT. Gynækologisk cancer og seksualitet; evidens og forskningsmæssige perspektiver. Ugeskr. Læger 2002;164(41):4796-801

Goldschmidt D, Strömgren LAS, Grønvold M. Effekten af specialiseret palliativ indsats. Ugeskr Læger. 2002 Jan 21;164(4):468-9.

Goldschmidt D, Andersen L, Pedersen L, Grønvold M. Specialiseret palliativ indsats i eget hjem. Månedsskr Prak Lægegern. 2002 Dec;80(12):1731-35.

Mørch MM, Sjøgren P. Palliativ sedering. Ugeskr Læger 2002;164:472-3 (review).

Pedersen L, Grønvold M, Sjøgren P. Forskningsaktiviteter på en palliativ medicinsk afdeling. Ugeskr Læger 2002;164:492-4. 

Pedersen L, Hørmann L. Den første palliative medicinske afdeling i Danmark. Månedsskr Prakt Lægegern 2002;80:1525-31. 

Pedersen L. Palliative onkologiske behandlingsmodaliteter. In: Sjøgren P, Mørch MM, Eriksen J. Håndbog i palliativ medicin. Copenhagen: Munksgaard, 2002:121-129.

Grønvold M. Evaluering. In: Sjøgren P, Mørch MM, Eriksen J. Håndbog i palliativ medicin. Copenhagen: Munksgaard, 2002: 193-197.

Other publications
Pedersen L, Jensen AB, Enig B et al. Den lægelige uddannelse i palliativ medicin. Ugeskr. Læger 2002; 164; 2: 500-502.

Hansen SR. Studieophold i USA - hvorfor ikke? Sygeplejersken 2002;11:42-46.

Hansen SR. Sygeplejeforsker eller galionsfigur. Sygeplejersken 2002;32:24-27.

Hansen SR. Studieophold i USA - en Ph.D.-studerendes erfaringer. Institut Nyt. Institut for Sygeplejevidenskab. 2002;1:7.

Hansen SR. Boganmeldelse af Halskov Madsen K, Due Madsen L. Sygeplejen i den palliative indsats. København. Munksgaard 2001. Sygeplejersken 2002;5:31.

Hansen SR. Boganmeldelse af Dalgaard KM. Pårørende i den palliative indsats. Dansk Sygeplejeråd 2001. Sygeplejersken 2002;7:31.

2001


Peer-reviewed, original articles
Sprangers MAG, Groenvold M, Arraras J, Franklin J, te Velde A, Muller M, Franzini L, Williams A, de Haes HCJM, Hopwood P, Cull A, Aaronson NK on behalf of the EORTC Study Group on Quality of Life. The EORTC Breast Cancer-Specific Quality-of-Life Questionnaire Module (QLQ-BR23): first results from a three-country field study. Classic Papers and Current Comments 2001; 5: 917-929. OBS Tidligere udgivet artikel udvalgt til genoptryk med opdatering.

Strömgren AS, Groenvold M, Pedersen L, Olsen AK, Sjøgren P. Does the medical record cover the symptoms experienced by cancer patients in palliative care? A comparison of the record and patient self-rating. Journal of Pain and Symptom Management 2001; 21 (3): 189-196.

Strömgren AS, Groenvold M, Soerensen A, Andersen L. Symptom recognition in advanced cancer. A comparison of nursing records against patient self-rating. Acta Anaesthesiol Scand 2001; 45: 1080-1085.

Becker N, Sjøgren P, Beck P, Eriksen J. Behandlingsresultater for kroniske non-maligne smertepatienter behandlet i tværfagligt smertecenter eller i almen praksis – en randomiseret kontrolleret undersøgelse. Ugeskr Læger 2001; 163: 3078-82.

Becker N, Højsted J, Sjøgren P, Eriksen J. Sociodemografiske prædiktorer for behandlingsresultat hos kroniske non-maligne smertepatienter. Har patienter, der får eller som ansøger om førtidspension, udbytte af tværfaglig smertebehandling? Ugeskr Læger 2001; 163: 3073-77.

Peer-reviewed proceedings and reviews; book chapters
Hansen SR. Patienters oplevede lidelse – perspektiveret i forhold til uhelbredeligt kræftsyge patienter. Vård i Norden 2001; 1: 30-34. 

Thomsen AB, Sørensen J, Sjøgren P, Eriksen J. Economic evaluation of multidisciplinary pain management in chronic pain patients. A qualitative systematic review. J Pain Symptom Manage Vol. 22: 688-698, 2001. 

Mørch MM, Buur T. Subkutan væsketerapi – hypodermoklyse. Månedsskrift for Praktisk Lægegerning 2001; 79:1277-1286

Eriksen J, Olesen AS, Sjøgren P. Organisation af smerteområdet. In: Smerter og smertebehandling. Eds. Jensen TS, Arendt L, Dahl J. FADL’s Forlag, 2001.

Sjøgren P, Pedersen L. Cancersmertetilstande – epidemiologi, ætiologi og behandling. In: Smerte og smertebehandling. Eds. Jensen TS, Arendt L, Dahl J. FADL’s Forlag, 2001.

Fayers P, Aaronson NK, Bjordal K, Groenvold M, Curran D, Bottomley A, on behalf of the EORTC QLQ-C30 Scoring Manual (3rd edition). ISBN 2-930064-22-6. Brussels: European Organisation for Research and Treatment of Cancer; 2001, 1-86.

Other publications 
Sjøgren P, Højsted J, Eriksen J. The anaesthesiologist and chronic pain. Acta Anaesthesiol Scand 2001; 45:1057-8. 

Koblen A, Tonnesen E. Mundpleje og Mundtørhed. Sygeplejersken 2001 (7); 26-45.

Koblen A. Etiske fortællinger. Sygeplejersken 2001 (16); 36-39.

2000


Peer-reviewed, original articles
Becker N, Sjøgren P, Bech P, Olsen AK, Eriksen J. Treatment outcome of chronic non-malignant pain patients in a Danish multidisciplinary pain center or in general practice - a randomized controlled trial. Pain 84: 203-11, 2000. 

Kramer JC, Curran D, Piccart M, de Haes JCJM, Bruning P, Klijn J, Pottelsberghe C, Groenvold M, Paridaens R. Randomized trial of paclitaxel versus doxorubicin as first line chemotherapy for advanced breast cancer: quality of life evaluation using the EORTC QLQ-C30 and the Rotterdam Symptom Checklist. European Journal of Cancer 2000; 36: 1488-1497. 

Sjøgren P, Thomsen AB, Olsen AK. Impaired neuropsychological performance in chronic non-malignant pain patients in long-term oral opioid therapy. J Pain Symptom Manage 19: 100-108, 2000.

Sjøgren P, Olsen AK, Thomsen AB, Dalberg J. Neuropsychological performance in cancer patients: The role of oral opioids, pain and performance status. Pain 86: 237-245, 2000.

Svarre HM, Würtzen H. Samtaler med den døende patient. Ugeskr Læg, 2000 Oct; 162: 5762-4.

Watt T, Groenvold M, Bjorner J, Noerholm V, Rasmusen N-A, Bech P. Fatigue in the general population: influence of sociodemographic factors and disease. Journal of Epidemiology and Community Health 2000; 54 (11): 827-833. 

Peer-reviewed proceedings and reviews; book chapters
Eriksen J, Sjøgren P, Jensen N-H. Praktisk klinisk smertebehandling. Smerter ved cancer og langvarige kroniske non-maligne tilstande. Munksgaard, 4. udgave, s. 1-252, 2000.

Other publications 
Pedersen L, Sjøgren P. Forskningsaktiviteter på en palliativ medicinsk afdeling i Danmark. Omsorg 2: 36-40, 2000.

Rydahl S. Retten til at være patient. Sygeplejersken 2000, nr. 22, 52-55.


1999 

Peer-reviewed, original articles
Becker N, Sjøgren P, Beck P, Olsen AK, Eriksen J. Treatment outcome of chronic non-malignant pain patients in a Danish multidisciplinary pain center or in general practice - a randomized controlled trial. Pain 82: 1-9, 1999.

Caraceni A, Portenoy RK, Ashby MG, Hawson G, Jasckson KA, Lickiss N, Muirden N, Pisasale M, Moulin D, Schulz VN, Rico Pazo MA, Serrano JA, Andersen H, Henriksen HT, Mejholm I, Sjøgren P, Heiskanan T, Kalso E, Pere P, Poyhia R, Vuorinen I, Tigerstedt P, Ruismaki P, Bertolino M, Larue F, Ranchere J, Hege-Scheuing G, Bowdler I, Helbing F, Kostner e, Radbruch L, Kastrinaki K, Shah S, Jain PN, Vijayaram S, Sharma KS, Sarashawathi Devi P, Ramamani PV, Beny A, Brunelli C, Maltoni M, Mercadante s, Plancarte R, Schug S, Zhang P, Gazizov A, Vaisman M, Rudoy s, Gomez Sancho M, Vila P, Trelis J, Chaudakshetrin P, Koh MLJ, Van Dongen RTM, Vielvoye-Kerkmeer A, Boswell MV, Elliott T, Hargus E, Lutz L. An international survey of cancer pain characteristics and syndromes. Pain 82: 263-274, 1999.

Christrup LL, Sjøgren P, Jensen N-H, Banning A-M, Ellbæk K, Ersbøll AK. Steadystate kinetics and dynamics of morphine in cancer patients. Is sedation related to the absorption rate of morphine? J Pain Symptom Manage 18: 164-173, 1999.

Groenvold M, Fayers PM, Sprangers MAG, Bjorner JB, Klee MC, Aaronson NK, Bech P, Mouridsen HT. Anxiety and depression in breast cancer patients at low risk of recurrence compared with the general population - a valid comparison? Journal of Clinical Epidemiology 1999; 52: 523-530.

Kristensen B, Ejlertsen B, Groenvold M, Hein S, Loft H, Mouridsen HT. Oral clodronate in breast cancer patients with bone metastases: a randomized study. Journal of Internal Medicine 1999; 246: 67-74.

Engelholm P, Pedersen L, Holck S. Quantification of microvessel density of breast: an assessment of the inter- and intraobserver variation. The Breast 1999; 8: 251-256.

Olsen AK, Sjøgren P. Oral Glycopyrrolate alleviates drooling in a patient with tongue cancer. J Pain Symptom Manage 18: 300-302, 1999 (kasuistik).

Peer-reviewed proceedings and reviews; book chapters
Groenvold M. Methodological issues in the assessment of health-related quality of life in palliative care trials: four criteria for quality evaluation. Acta Anaesthesiologica Scandinavica 1999; 43: 948-953.

Grønvold M, Bigaard JV. Håndtering af litteratur-referencer på computer. Ugeskr Læger 1999; 161: 411-413.

Sjøgren P, Eriksen J. Second International Copenhagen Pain Symposium: Aspects of Chronic Pain. Anaesthesiol Scand 43: 878-879, 1999 (editorial).

Fayers P, Aaronson NK, Bjordal K, Curran D, Grønvold M on behalf of the EORTC Quality of Life Study Group. EORTC QLQ-C30 Scoring Manual. 2nd edition. ISBN 2-930064-16-1. Brussels: EORTC; 1999, 1-77.

Other publications
Pedersen L. På vej mod et nordisk tværfagligt core curriculum i palliativ medicin. Ugeskr Læger 1999; 161/32: 4533.

Pedersen L, Ethelberg E. Forord. I: Faulkner A, Maguire P. Kommunikation med kræftpatienter. Munksgaard 1999; 7.

Pedersen L, Ethelberg E. Kapitel 14. Praktisk kommunikationstræning. I: Faulkner A, Maguire P. Kommunikation med kræftpatienter. Munksgaard 1999: 278-283.

Pedersen L. Strålebehandling, hormon- og kemoterapi i den palliative behandling. I: Faglige retningslinier for den palliative indsats. Sundhedsstyrelsen 1999: 73-78.

Sjøgren P, m.fl. Omsorg for alvorligt syge og døende. Faglige retningslinier for den palliative indsats. Omsorg for alvorligt syge og døende. Sundhedsstyrelsen, s. 1-116, 1999.

Sjøgren P, Ingerslev N, Hørmann L, Grønvold M. “Udefunktion” som forsøgsordning - på Palliativ Medicinsk Afdeling, Bispebjerg Hospital. Lægen, februar 1999, 22-23.

Hørmann L, Sjøgren P, Grønvold M. Kræftsyge behandles hjemme: Hospital og hjemmepleje samarbejder. Indblik, februar 1999, 14-15.

Sjøgren P. Palliativ udefunktion. NYH:S, nr. 1, 1999, 25.

Pedersen L. Palliativ Medicin i Forskning og Praksis. Gerontologi og Samfund 1999; 15 (1): 4-6.

Olsen AK. Boganmeldelse af Fallon M and O’Neill B (eds.). ABC of Palliative Care. BMJ Books 1998. Ugeskr Læger 1999; 161: 1757.


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